Useful Prem Websites
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Support Sites |
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Australia |
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Six of Australia’s prem support groups have come together to form a national organization that will unify, and act as a guiding body for existing prem support groups, help to create new ones, help to improve the treatments and outcomes available for premature infants, and represent the interests of these infants and their families in terms of health policies, funding and standards of care. |
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Austprem www.austprem.org.au
Austprem is an incorporated, non-profit organisation in Australia. Those involved have all experienced, or been closely involved with the experience of prematurity. We aim to support in any way we can parents and caregivers of other premature infants and children. |
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L'il Aussie Prems is Australia’s online support site for parents and families of premature babies. |
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Parents of Premature Babies Inc. www.preemie-l.org
Parents of Premature Babies Inc. is a non-profit foundation supporting families with children born six weeks or more before due date. |
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A charity run by volunteer parents who themselves have had a premature baby. We provide support and assistance to other families of premature babies throughout Victoria, either in hospital, neonatal intensive care units, special care nurseries or in the community when families get home. |
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Loddon Mallee Kids is a Not for Profit Organisation that is based in Bendigo, Victoria, Australia. Our aim is to provide support, information and resources to families and carers who are involved with parenting prematurely born babies and children. |
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The Featherweight Club is a voluntary organisation established to support the families and babies of the Special Care Nurseries at Mercy Hospital for Women in Heidelberg, Melbourne and to raise awareness of their particular needs, both within the hospital environment and the broader community.
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Nepean Neonatal Intensive Care Unit Parents Support www.prematurebabes.org – Nepean General Hospital, Penrith, NSW
NNICUPS is a registered charity based at the Nepean Hospital. Our members are parents of babies who have been cared for in Nepean's NICU. Our aim is to support parents before and after the birth of their baby and especially while their baby is in the Neonatal Intensive Care Unit.
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Miracle Babies celebrates the birth of babies who enter our world challenged by prematurity or sickness. Our mission is to provide support to families throughout Australia during their journey through a Newborn Intensive Care Unit (NICU), the transition to home and onwards.
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Little Wonders mission is to touch the lives of each family in the Neonatal Intensive Care Unit or Special Care Nursery in a positive, lasting way and to offer the best support network and information for the parents and families who have experienced a difficult pregnancy, premature birth, the loss of a baby, or have a child with additional needs within John Hunter Children’s Hospital’s Neonatal Intensive Care Unit (NICU).
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Having a premmie or sick baby is something that none of us expect to face. Varying reasons have lead us here but we share a common bond and understanding. If you are interested in meeting people who share similar experience’s please come along to our monthly meets where you will form friendships, be informed by guest speakers and relax with those who truly understand you. |
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PIPA is an organisation of volunteers, all of whom are parents of premature babies. This helps us to understand the problems, issues and joys which other parents may experience. PIPA does not offer professional advice. Rather, we offer understanding, support, encouragement and friendship.
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CQ Premmies is the Central Queensland branch of the Preterm Infants' Parents Association Inc. (PIPA) and is intended to cater to the unique needs of those from a region in which there are no major hospitals. |
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New Zealand |
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Our aim is to support families who have had a premature baby while they are in the Neonatal Unit and beyond. We have created the HOPE (Helping Out Parents of Early arrivals) website to help inform, inspire and offer hope to those who have had a premature baby.
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ParentCare www.parentcare.org.nz
ParentCare exists to support the parents of sick and premature babies. Our point of contact is primarily at Auckland City Hospital where our office is based, but our vision is to be supporting parents from across New Zealand.
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Provides support and services for parents of babies in Neonatal Unit and fundraises for equipment for Unit.
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United States |
('Preemie' is another term used to describe a premature child) |
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Online support and hundreds of articles for parents of preemies, focus on special needs of preemies and older preemies.
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Information and emotional support for preemie parents and health care professionals.
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Preemie Baby Help has been created for all families of preemie babies. The aim of the site is to provide a friendly environment for all parents. Often parents are overwhelmed by the medical jargon. Our articles attempt to provide good information for parents of preemies in an accesible format. Hopefully you'll find all the information that you need, we are adding to it all the time. So if you're anything from the parent of a 22-week preemie to a fully grown adult who was born prematurely, we want to hear from you! |
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United Kingdom |
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Bliss, the special care baby charity, was established nearly 30 years ago and continues to champion the care of our most vulnerable babies and their families. We are the only national organisation dedicated to improving the survival and long-term quality of life for babies born too soon, too small or too sick to cope on their own.
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Our aim is to support everyone affected by a premature birth. We would like to help parents to know what they can do to help in the care of their baby and to promote "bonding" with their baby. We understand that Doctors and Nurses can sometimes be intimidating because we've "been there, done that" and we understand that sometimes you just want to let off steam, and that's what we're here for.
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Australia |
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The Bonnie Babes Foundation is a non government funded, non-profit, volunteer based charity which provides 24 hour, 7 day per week counselling for families that have experienced the loss of a baby through miscarriage, stillbirth or prematurity; medical equipment to hospitals for premature babies; vital medical research projects into pregnancy loss and complications after birth; provides support for infertility issues, children born with abnormalities and childhood illnesses. The Foundation also provides education and training for health professionals.
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SIDS and Kids is dedicated to saving babies' lives through the elimination of sudden and unexpected infant deaths, and supporting bereaved families. We deliver on our vision through world class education, research, evidenced based intervention and advocacy.
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The main aim of this organisation is to break down the massive wall of fear and ignorance surrounding grief, and to replace it with love and understanding. Initially, set up to cater for the needs of families in the Murraylands region of South Australia who suffered any form of pregnancy loss, it has developed into one of the few organisations around the world that can specialise in twin loss and other higher order multiple loss issues.
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AngelBaby was created to help unite families with others who have lost their child, in the hope that they can help each other heal.
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New Zealand
Sands New Zealand (Stillbirth and Newborn Death Support) are a voluntary, parent-run, non-profit organisation set up to support parents and families who have experienced the death of a baby.We promote awareness, understanding and support for those dealing with the death of a baby in pregnancy, birth or as a newborn, and due to medical termination or other forms of reproductive loss.
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Twin Loss NZ are a New Zealand-wide group for those who have lost one or more or all of their twins, triplets or more in a multiple birth from early pregnancy to childhood and beyond including the loss of a twin sibling in adulthood.
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United States
Helping After Neonatal Death, is a California non-profit corporation, founded in 1981 to help parents, their families and their healthcare providers cope with the loss of a baby before, during, or after birth.
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This web site offers information regarding multiple births. It includes pregnancy and post-natal information and, from the point of view of new parents, it attempts to address some of your questions and concerns. Although a joyous time, there are sometimes risks in multiple births. Hence this web site also offers bereavement support for parents who have lost one, more or all of their multiple birth children during pregnancy or in infancy. |
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United Kingdom
U.K. Sands is a national charity, established by bereaved parents in 1981. We have 3 core aims which are to: Support anyone affected by the death of a baby; to work in partnership with health professionals to improve the quality of care and services offered to bereaved families; and to promote research and changes in practice that could help to reduce the loss of babies' lives. |
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Babyloss is a UK-based resource of information and support for bereaved parents and their families who have lost a baby at any stage of pregnancy, at birth, or due to neonatal death. The organisation was established in 2000, and is run by a small team of volunteer administrators and forum moderators. The Babyloss website provides information and support online for anyone affected by the death of a baby during pregnancy, at birth, or shortly afterwards. |
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Australia |
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This site was created by the mother of twin premmie baby girls with the help of other parents of premature babies and some special NICU nurses, to help other families with premature babies, twins, and triplets, small or sick babies. It is a place for premature baby clothing, premmie nappies, premature baby advice and news.
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Moment by Moment E-Boutique Baby Store provides Premmie baby clothes, cuski baby comforter, earlybirds baby wear, premmie nappy packs, premature baby dummy, Dr Browns Feeding bottles for premmie baby, expressing equipment, personal premmie stories, hosts premmie support group meetings, premmie pictures, premmie blogs at www.cafeprem.com.au (free blogging site for parents of premmie and sick babies to share their experience.)
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Isolette suits, body suits, all-in-ones, jackets, t-shirts, pants, hats, singlets, jumpsuits, booties, bibs, swaddling wraps, nightgowns, gift sets and gift certificates. |
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Hibubs Clothing www.hibubs.com.au
Hibubs premature clothes are designed and made in Australia for premmie babies. We offer more than 'all-in-one' sleep wear solutions by providing day clothes for your precious tiny baby.
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We are Australian specialists in hand-made shoes for infants and babies (including premature and new-born). Our products are made from specially selected materials and soft leathers. Our deer hide is purchased from an all-Australian company. Each shoe purchased provides a 50c donation to one of three chosen charities.
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Our Preemie Baby Outfits are made of soft fabrics and are made for comfort and dressing ease. These Preemie Baby Outfits fit a premature baby approximately 36 weeks (000000) unless otherwise stated. These Preemie Outfits are easy care and drip dry, perfect for those busy Mum's. Our Preemie Outfits have been made from all new fabric and materials and come from a smoke and pet free environment. |
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La Toriana aim to take the stress out of finding a quality product by providing an array of fashionable and stylish designer labels.... catering for prem babies, kids and even us grown ups!! La Toriana are also stockists of The BubBE Book.
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The Think Twins philosophy is to provide a practical and affordable shopping service of Australia's biggest range of twin specific products. We aim to take the guesswork out of buying gifts for twins, by designing pairs of products that should delight the recipients. Whether you are a friend or relative looking for a gift, or a parent looking for a special product to make life easier, we promise you will find the most unique product range here at Think Twins. Our clothing range for premature babies fits those weighing 800 grams and above.
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Precious prems stock Tummytub, Hugabub, Earlybirds, Safetsleep, Zaky, and our own custom made range of NICU approved baby clothing. |
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Adorable for kids....Affordable for parents! Adorable Affordable stock a large collection of beautiful baby clothes and childrenswear, available in sizes suitable for prem babies through to 7 year olds. They also have a fantastic range of leather shoes for babies, toddlers and children and are stockists of The BubBE Book. |
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New Zealand |
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We are proud to offer a range of clothing for premature and low birthweight babies here in New Zealand. Snugglebump offers a range of clothing and accessories for babies from 800gm to 2.5Kg (1lb 7oz - 5lb 5oz) as well as maternity tube tops suitable for use during and after pregnancy.
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We know how special your new little bundle is - and especially when they arrive ahead of schedule. We also know how frustrating it is trying to find clothes that fit your baby properly and that don't make your baby look like it is just a bundle of clothes with no child inside. We stock premature clothing sets, scrapbooking supplies, body suits, gowns, all-in-ones, tops, bottoms and accessories
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United States |
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Rather than just settling for doll clothes, frumpy clothes, and ridiculous sizes, customers can now choose beautiful preemie clothes specifically designed for hospitalized or going home preemies in a variety of appropriate sizes and styles with the convenience of online shopping.
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At the Preemie Store, you will find preemie clothes , from micropreemie to going home. We try to provide you with a complete selection of clothing for your smaller baby, from one pounders up to fitting into newborn sizes. We carry less expensive basics at lower than normal retail price to expensive designer clothes, and whenever possible a great deal on all makes and sizes! |
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You'll find everything you need to dress tiny preemies in comfort and style at Nurture Place. Our clothes are designed to provide easy nurse access, accommodate monitoring leads and IV tubes, and are constructed with natural "breathing" fabrics, like 100% cotton. If your baby is ready to go home, you'll find lots of PREEMIE Take-Me-Home super-cute garments for leaving the hospital and dressing him/her at home.
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United Kingdom |
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Our clothing range has been designed specifically for premature and low birth weight babies following eighteen months of investigative research involving neonatal specialists and parents. Our garments are soft, comfortable, correctly sized and suitable for babies in neonatal and homecare environments. |
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We offer many products including basics, hospital wear and also innovative medical products to give your baby a more comfortable stay in the hospital unit. All of the clothes and products, without exception, are the best quality available and have been designed with the tiniest preemies in mind - they are not dolls clothes nor are they pre-shrunk newborn clothes. Our range caters for preemies from 454 grams/1lb. |
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Incubator wear, clothes and essential accessories specially created for premature and low birthweight babies up to 24 months. |
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Tiny Baby & Co. have lovingly designed clothes for your special tiny baby. They are practical in cotton rich fabrics and fun to wear. There are four colour ways to choose from and all garments are from 1.5 - 3.5 kgs.
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Prem2Pram offer a range of personalised items for the parents and family of premature and low birth weight babies right up to the age of three years. They also sell items of clothing for expectant mothers.
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At Precious Prems Ltd. you will find tiny premature baby clothes for babies weighing from 400g (8lbs). Our range includes preemie baby wraps, incubator wear, outfits for premature & low birthweight babies and also handmade cards and gifts....basically just about everything you could possibly need or want for your premature baby during it's time in the NICU or Special Care Baby Unit.
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We stock a basic range of products suitable for prematurely birthed babies and great products for twins, triplets & more, including Bambo disposable, Mommy's Touch prefold and Real cotton cloth nappies.
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Nordic Nappies specialises in eco friendly baby products, including Bambo Nature premature baby nappies (sized 1 - 3 kg). We also offer eco friendly products for toddlers, children and adults. |
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Ecobots stock prem sized (900 g - 2.7 kg) prefold nappy covers and inners. They are made using specialized lamination technology that enhances durability and improves performance, are waterproof and breathable, suit all types of laundry washing and tolerate being tumble dried. They have a leak-proof urethane barrier, double barrier gusset around the legs to prevent leaks, waterproof velcro fastening to ensure a secure fit, long fastening strip across tummy to give a maximum fitting range, elastic across the back to provide a snug fit, material edges to prevent stratches, and an umbilical scoop to prevent rubbing on tender new skin.
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Cheeky Butts stock Bum-Boo's pastel trim bamboo and hemp newborn/premi nappy. It is a great nappy made with 2 layers of Bamboo / Organic Cotton Fleece, 1 thirsty layer of hemp and a 2 layer sewn in hemp booster. It has gentle elastic in the waist and legs, polyresin snap closures with crossover snaps for greater adjustment, is overlocked with a contrasting thread for decoration and comes with a matching booster. Bamboo is naturally antibacterial as is hemp, it is beautifully soft next to the skin, up to 60% more absorbent than cotton and dries 20% faster too. This makes a great night time nappy yet is trim enough for day wear.
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Zappy Nappy® Premature Nappy is easy to use, soft and comfortable with a built in absorbency and a waterproof barrier. |
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Kiwi Green stock BumBees muslin nappies for newborn & premature babies.
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Our Cotton Prefolds are available in a range of sizes from premature (up to 3 kgs) through to large. They use biodegradable liners to catch all the solids, making your nappies more pleasant to wash. The bio-liners can be flushed down the toilet with the solids. Check out our Real Nappies Original nappy cover: This is the best lightweight, great-fitting nylon cover available! Match this with out premature prefolds and have the perfect, leakproof fit for your little one!
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Patterns for all things preemie, including hats, booties, mittens, diaper sets, sweaters, onesies, Afghans, bibs, isolette covers and even a pattern for creating a doll that replicates the size of your child!
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Prem in Perth is the personal journal of Kathryn and her premmie Talia. It is also a growing source of useful information for families of premature babies born in Western Australia. |
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Brisbane Premmies was started by mother-of-one Bec as a way to write about her experiences raising her daughter Erin after her release from the NICU. It has evolved to be a source of information on a range of premature baby issues. |
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TummyBear specialises in cloth keepsake dolls that are hand made especially for premmie families. The dolls are custom made to your baby's actual birth measurements and weight. The dolls provide an excellent way for you to show and remember your baby’s birth size. |
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The AASP's mission is to advocate and improve automobile safety for pregnant women and their babies through education, advocacy and research and to provide information, statistics and services for families and individuals impacted by pregnancy related crashes. |
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Nicole Zimmerman and Edward Sprague have written a book designed to help parents of “preemies,” their families and friends – as well as healthcare providers who care for these children -- to understand and navigate the uncertainty surrounding premature births. The NICU Rollercoaster: How to Set Up and Use and Online Blog to Help Survive the Ups, Downs, Agonies and Joys of Your Baby’s Stay explains common problems preemies face, offers suggestions for coping, and shares the authors’ experiences. The innovative format combines helpful “how to survive” advice with blog entries and blog reader comments.
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Conception, Pregnancy, Birth and Parenting Forum & Directory. |
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A cotton nappy laundry service and sales company that covers the English counties of Essex, Suffolk, Cambridgeshire and North London. |
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The Australian Baby Guide is a one-stop book for new parents brimming with expert articles, reassuring parent-to-parent advice and featuring the most comprehensive and reputable Resources section ever published in Australia. |
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Makers of handstitched christening and angel gowns.
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